Please Support our Fundraiser for Cystic Fibrosis!

It’s that time of year again! We’re walking to raise funds and awareness at the Cystic Fibrosis Foundation Great Strides event!

This is our fourth year participating in Great Strides! Here are our totals for the previous three years:

2013: $2,575
2014: $2,310
2015: $2,935

The past two years, we had held our own additional fundraiser, Darts for CF, that helped raise our totals, but we aren’t able to do so this spring. So our only fundraising efforts through the Great Strides event!

We hope to raise at least $1000 this year, so I’m reaching out to everyone!

CLICK HERE TO DONATE OR JOIN OUR TEAM!

Calling Cystic Fibrosis Patients

Do you have Cystic Fibrosis?

Do you have a story that you’d like to tell? Some tips that you’d like to share? A photo depicting an important moment in your life?

I’d considering doing a series of blog posts about people with Cystic Fibrosis. I haven’t formed any real structure around it, but I do know that I’d like to include people from many parts of the world, from different backgrounds, etc.

If you are interested, please comment send an email to: therapink . com @ gmail .com (remove all empty spaces).

To begin with, please provide the following information (please note that this information is for my general info-gathering purposes only):

1. Name (first and last – although only your last name’s First Initial, and not your last name will not be included in the blog post unless you give permission to do so)

2. State/country

3. Age

4. Age at diagnosis

5. Single – Relationship – Married – Separated – Divorced – Widow – Other

6. Children? Yes or No

7. Transplant? Yes or No

8. CF Mutations

9. Best way to reach you – email address, phone number, or text message

10. Some words that describe you. For example, I might say this about myself: writer, cats, silly, book smart but street-naive

11. In addition, I would like to include at least one or two photos of you, once I write each post. Don’t send them now, just send your answers to the ten questions.

Thank you in advance. I truly hope that my plan turns into something of value. If it doesn’t, I thank you for your time. I’m pretty sure, however, that this will become something. Let’s see where this goes!

May is Cystic Fibrosis Awareness Month – An Invitation to CF Bloggers

Wow, an entire month, dedicated to educating the world about a disease called Cystic Fibrosis (CF)! Where do I start? If you’ve been reading my blog, you know about CF and how it affects me. However, there 30,000 Americans and 70,000 people total worldwide who registered in the CF directory, each with varying levels of illness in their lungs, digestive system, and other organs. We may share many of the same issues and treatments, but no two of us are exactly the same, which makes treating CF complex. Even among identical twins, CF can manifest in different ways and degrees of severity.

Beginning May 1, 2014, I plan (hope) to write a blog post each day during the month of May, covering a particular year or years, in chronological order. CF was kinder to me during some years compared to others, but the daily grind of medications, treatments, and concerns never went away. In addition, I will be sharing our experiences at the Great Strides walk event -our second year walking as a team, as well as any other CF updates that may come along.

Time To Fight

I’ve referred to CF patients as Warriors. We are always fighting battles, in the hope that we may one day, win the war against Cystic Fibrosis. I invite and challenge my fellow CF bloggers to do the same – share something each day to bring Cystic Fibrosis to the forefront of people’s minds. This is how we find the resources to develop better treatments and that elusive cure. I look forward to learning more about each of you, and seeing CF through your eyes! Please provide a link to your blog in the comment box below.