May is Cystic Fibrosis Awareness Month – An Invitation to CF Bloggers

Wow, an entire month, dedicated to educating the world about a disease called Cystic Fibrosis (CF)! Where do I start? If you’ve been reading my blog, you know about CF and how it affects me. However, there 30,000 Americans and 70,000 people total worldwide who registered in the CF directory, each with varying levels of illness in their lungs, digestive system, and other organs. We may share many of the same issues and treatments, but no two of us are exactly the same, which makes treating CF complex. Even among identical twins, CF can manifest in different ways and degrees of severity.

Beginning May 1, 2014, I plan (hope) to write a blog post each day during the month of May, covering a particular year or years, in chronological order. CF was kinder to me during some years compared to others, but the daily grind of medications, treatments, and concerns never went away. In addition, I will be sharing our experiences at the Great Strides walk event -our second year walking as a team, as well as any other CF updates that may come along.

Time To Fight

I’ve referred to CF patients as Warriors. We are always fighting battles, in the hope that we may one day, win the war against Cystic Fibrosis. I invite and challenge my fellow CF bloggers to do the same – share something each day to bring Cystic Fibrosis to the forefront of people’s minds. This is how we find the resources to develop better treatments and that elusive cure. I look forward to learning more about each of you, and seeing CF through your eyes! Please provide a link to your blog in the comment box below.


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