Just a quick update. CF has really been beating me up lately. I developed a sinus infection about six weeks ago. I culture Pseudomonas Aeriginosa and MRSA bugs in my sinuses as well as my lungs. I tried to manage … Continue reading
Ever since we moved into our home 8 years ago, we’ve always wanted to designate one of our spare rooms as “my room”. In our previous home, we had a furnished guest bedroom on the other side of the house that … Continue reading
Have you ever heard the phrase, “Grow where you’re planted”? It comes from the Bible 1 Corinthians 7:14-24, but I am taking it out of context because those four words are great advice for what I am experiencing. In other words, do the best … Continue reading
The second half of 2014 was rough. In addition to three hospitalizations in six months, we had what could have been the biggest life-changer to date. Continue reading
It’s so important to have the right support when you have a chronic illness. Sometimes, I just don’t want to do the things that I need to do to maintain my health or during an exacerbation, such as airway clearance for hours a day, nebulizer treatments (two meds new to my regimen), inhaling antibiotics, or getting all my meds in at the right time.
It’s always easier if you have a friend or buddy to keep you company. Of course, my cats always “help” when it’s time to rest.
I just wanted to update everyone and let you know that I got my PICC line pulled and finished my IV antibiotics. It felt so good to shower without a plastic bag taped around my arm (I can’t get my PICC line wet) and to sleep without having tubes tangling up in the sheets.
Today my hubby took me out to breakfast at our favorite place.