I am going to start sharing my life with CF here on my blog instead of on Facebook. This way, if people are interested, they just need to check here. I apologize for the extra step, and I promise this is not because I want “followers”. I just don’t want to bring people down with constant bad news.
So here goes.
This weekend, just 12 days after leaving the hospital, my MRSA infection has flared up again. Fevers, lots of lung and sinus junk, dropping O2 levels…the whole gamut. Thankfully, I have a CF clinic appt scheduled for today as a followup to my hospitalization from 2 weeks ago.
I am very nervous because this infection is insidious. The doctors admitted to me in the hospital that they are stumped. But we hope that we might find some answers, and I will update you later on those.
I also have a new issue as a result of my treatments. My fabulous vest, which gives me independence to do my own airway clearance (chest physio therapy) by shaking me, has gradually effected my back and leg muscles to the point where I am in great discomfort.
Basically, because I’m short, my legs do not touch the floor of anything I said on, and I have a bony butt which doesn’t give me much support. As a result, all that shaking is causing back instability – now some of my muscles are now in pain all day every day, even overnight.
I am doing physical therapy on my own, using a STIM machine, moist compresses, and exercises to keep my legs and back stretched out. But every time I get relieved, the discomfort returns the moment I start doing another vest. I hope that the doctors can help me find a solution, because I have not found one that will help me at this point.
It would happen every once in a while, but started being constant before my hospitalization. Because I was told to continue doing high levels of vest therapy a day, 3 to 4 hours, that discomfort became constant.
So we have to work on a plan to get my airway clearance done without damaging anything else.
Thanks for reading, and I will update when I have any new information. Thank you for your support and love!