As if my body somehow can read a calendar, I am back in the hospital. I have been averaging an inpatient stay for IV antibiotics every six months or so, and I was last inpatient in December, so it’s about … Continue reading
I’m still sick – it’s been about 2 1/2 months now, and am nearing the time when we need to decide as to whether we need to escalate or not. Like the saying goes, “April showers” and all that jazz… I guess … Continue reading
Just a quick update. CF has really been beating me up lately. I developed a sinus infection about six weeks ago. I culture Pseudomonas Aeriginosa and MRSA bugs in my sinuses as well as my lungs. I tried to manage … Continue reading
Ever since we moved into our home 8 years ago, we’ve always wanted to designate one of our spare rooms as “my room”. In our previous home, we had a furnished guest bedroom on the other side of the house that … Continue reading
Have you ever heard the phrase, “Grow where you’re planted”? It comes from the Bible 1 Corinthians 7:14-24, but I am taking it out of context because those four words are great advice for what I am experiencing. In other words, do the best … Continue reading
The second half of 2014 was rough. In addition to three hospitalizations in six months, we had what could have been the biggest life-changer to date. Continue reading
It’s so important to have the right support when you have a chronic illness. Sometimes, I just don’t want to do the things that I need to do to maintain my health or during an exacerbation, such as airway clearance for hours a day, nebulizer treatments (two meds new to my regimen), inhaling antibiotics, or getting all my meds in at the right time.
It’s always easier if you have a friend or buddy to keep you company. Of course, my cats always “help” when it’s time to rest.