Calling Cystic Fibrosis Patients

Do you have Cystic Fibrosis?

Do you have a story that you’d like to tell? Some tips that you’d like to share? A photo depicting an important moment in your life?

I’d considering doing a series of blog posts about people with Cystic Fibrosis. I haven’t formed any real structure around it, but I do know that I’d like to include people from many parts of the world, from different backgrounds, etc.

If you are interested, please comment send an email to: therapink . com @ gmail .com (remove all empty spaces).

To begin with, please provide the following information (please note that this information is for my general info-gathering purposes only):

1. Name (first and last – although only your last name’s First Initial, and not your last name will not be included in the blog post unless you give permission to do so)

2. State/country

3. Age

4. Age at diagnosis

5. Single – Relationship – Married – Separated – Divorced – Widow – Other

6. Children? Yes or No

7. Transplant? Yes or No

8. CF Mutations

9. Best way to reach you – email address, phone number, or text message

10. Some words that describe you. For example, I might say this about myself: writer, cats, silly, book smart but street-naive

11. In addition, I would like to include at least one or two photos of you, once I write each post. Don’t send them now, just send your answers to the ten questions.

Thank you in advance. I truly hope that my plan turns into something of value. If it doesn’t, I thank you for your time. I’m pretty sure, however, that this will become something. Let’s see where this goes!


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