I just received a letter in the mail which included a six-page questionnaire about the care I received while in the hospital for 2 weeks in September.
They ask questions about the care I received, the hospital environment, my hospital experiences, tests and treatments, etc.
I am under no delusion that my care is very complex. At home, I manage 15-20 medications, test and monitor my blood sugar for diabetes, and perform airway clearance (lung therapy). It’s not just a matter of taking a bunch of pills each day. Many of them have to be taken at specific times, in relation to waking up, eating, performing certain activities (like driving), avoiding potential interactions, managing treatment side effects, etc.
So when I’m admitted to the hospital, I have to turn in all control to a series of more than a handful of different departments to manage.
Every hospitalization is a challenging experience. I’m awakened early (sometimes 4am) to get blood taken, doctors from 3 or 4 different specialties visit me daily, each asking all of the same questions, poking and prodding me according to their focus. I feel like I have to give up agency over my own body. I succumb to the authority and power of mostly strangers. Continue reading