Creating My Tomorrow

A New Beginning?

You know the optimism you feel at New Year’s? The renewed hope for the future? The same enthusiasm you feel when a new baby is born, the anticipation of starting a new job or school?

I tend to view life as black or white, up or down, stop or go. I’ve never been content anywhere in the middle.

A few weeks ago, I stopped taking the new CF drug due to side effects and the interactions with several of my maintenance medications. With the drug also went the hopes from both the medical and CF communities that it would change my life.

It didn’t, and I chose to stop taking it. I didn’t have much time to mourn the loss of hope that came with taking the medication. Per my usual course, I’m experiencing both a lung flare-up and a belly flare-up. Bottom line is that I’m taking each day – sometimes each hour – as it comes.

CH-ch-ch-changes

“Taking life one moment at a time” – It’s been my mantra for the past few years, when things get tough – one moment at a time. It forces me to enjoy the small victories that go with living for the moment.

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It’s been a tough four months without a measurable reprieve, and I really, really, want to change my course. I want to be able to look beyond just the next hour or day, or heck, even the next week!

I have taken the hardest step – I have found the motivation. I am motivated to move forward in life, to get stronger, to do more. But I’m pretty weak. I have begun visualizing the things I desire – waking up with energy, walking a mile (or more!!), cleaning my house, going grocery shopping and getting my hair done in the same day (I so badly need some hair therapy!!). You know, the simple things that I used to take for granted.

I’m working on a plan to get myself back to at least where I was a year ago. I know that my enthusiasm is an important part of starting anew. Getting excited (in my case, overly excited) is our brain’s way of giving us the energy and adrenaline necessary to take the first steps.

So I am putting it out there, partly for the accountability, and partly for the help.

I’ve never been this physically weak and if I can help it, I will get stronger. I have to get stronger. For me, for my husband, for my family and friends, and my kitties. If I am going to have any quality of life, I am going to have to get my body to a place where it can handle more.

I know that I will always have to work around acute lung, GI and diabetes issues that force me into slowing down into survival mode, but I want to get to a point when I can bounce back and jump right back in after each crisis has resolved.

Now it’s your turn to share!

As I work on my plan, I would love to hear from others who have turned something in their life around – be it physical health or anything else important to you.

I want to give myself, and those I love, the best gift I can give – the best version of me possible!

So please, share…your stories, your inspirations, your mantras, what was most vital to accomplishing personal change.  I hope to glean pieces of your personal success stories and apply them as they can fit into my plans. Thank you in advance!


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*Please do not contact me with invitations to purchase or subscribe to specific diet plans, nutritional supplements, protein shakes, etc. I work very closely with my care team to manage my nutritional status based on my own physiological makeup, medication profile, and my body’s sensitivities and needs.

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